Self-Management Resources

Self-Management Programs and Support Systems in Your Community

Evidence-Based Self-Management Programs

  

Self-Management Resource Center

SMRC provides information on both small group and online programs for chronic disease and chronic pain self-management. These programs are typically offered through an independent organization. Click here to learn how you can see if a particular program is offered by an organization in your area.

Toolkit for Active Living with Chronic Conditions
This toolkit contains all of the tools in the Chronic Disease Self-Management Program, but is sent to you through the mail. You may wish to learn more about the toolkit if you are not able or do not wish to participate in a small group or online Self-Management Resource Center program.

Communicating with Friends, Family, and Co-Workers about Lupus

 

Speaking of Lupus
Video created by WebMD to help you talk to friends, family, and co-workers about lupus

Lupus Secret Language
Video created by WebMD to help you explain how lupus makes you feel to friends, family, and co-workers

Juggling Job and Lupus
Lupus Research Alliance provides things to consider when deciding whether or not to tell your workplace about your lupus

Support Groups and Systems

 

Local Chapters
Lupus Foundation of America has many chapters throughout the US that provide local support and resources

Prescription Assistance Programs

 

Lupus Resource Guide
Lupus Research Alliance created a guide that includes programs and services for people with lupus. This guide includes national programs, and those that are primarily offered in New York. The national resources include those related to health insurance, finding a rheumatologist, finding a mental health provider, general assistance programs, to name a few. Resources to help with medical expenses including prescription assistance programs are provided starting on page 4

Social Security Disability

 

Lupus: Applying for Disability
Video created by WebMD to help people with lupus apply for social security disability

This and the subsequent Self-Management pages contain a compilation of resources that may help people with lupus self-manage their health problems. The inclusion of these resources was based on recommendations made by a workgroup comprised of healthcare professionals and people living with lupus. This compilation of resources is not meant to be exhaustive and will be reviewed and updated at regular intervals. American College of Rheumatology (ACR) does not have commercial interest in any resources for which an organization collects a fee. Although most resources have been selected based on their effectiveness for specific or generic health problems, it is to the decision of each person with lupus and his or her healthcare team whether a specific resource might or might not be useful to self-manage his or her health problems. As part of the American College of Rheumatology, The Lupus Initiative follows the ACR’s policies regarding privacy, internal and external linking, and copyright and disclaimer issues. Please click here to visit the ACR for website policies.  This and subsequent Self-Management pages are, in part, supported by the Centers for Disease Control and Prevention under Cooperative Agreement Number NU58 DP006138. Its contents are solely the responsibility of its developers/authors. Points of view or opinions do not, therefore, necessarily represent official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.