Patients & Supporters

Self-Management Programs and Support Systems in Your Community

Evidence-Based Self-Management Programs

  

Self-Management Resource Center

SMRC provides information on both small group and online programs for chronic disease and chronic pain self-management. These programs are typically offered through an independent organization. Click here to learn if a particular program is offered by an organization in your area.

Toolkit for Active Living with Chronic Conditions
This toolkit contains all of the tools in the Chronic Disease Self-Management Program and is sent to you through the mail

Communicating with Friends, Family, and Co-Workers about Lupus

 

Speaking of Lupus
Video created by WebMD to help you talk to friends, family, and co-workers about lupus

Lupus Secret Language
Video created by WebMD to help you explain to friends, family and co-workers how lupus makes you feel

Juggling Job and Lupus
Lupus Research Alliance provides things to consider when deciding whether or not to tell people at your workplace about your lupus

Support Groups and Systems

 

Local Chapters
Lupus Foundation of America has many chapters throughout the US that provide local support and resources

Prescription Assistance Programs

 

Lupus Resource Guide
Lupus Research Alliance created a guide that includes programs and services for people with lupus. This guide includes national programs, and focuses especially on those offered in New York. The national resources include information related to health insurance, finding a rheumatologist, finding a mental health provider, and general assistance programs. Resources to help with medical expenses including prescription assistance programs are provided starting on page 4

Social Security Disability

 

Lupus: Applying for Disability
Video created by WebMD to help people with lupus apply for social security disability

Compiled August 2017 by The American College of Rheumatology (ACR) Lupus Initiative workgroup on self-management. This information is provided for general education only. Individuals should consult a qualified health care provider for professional medical advice, diagnosis and treatment of a medical or health condition. This and the subsequent Self-Management pages contain a compilation of resources that may help people with lupus self-manage their health. It is the decision of each individual and his or her healthcare team whether a specific resource might or might not be useful to self-manage his or her health. The inclusion of these resources was based on recommendations made by a workgroup comprised of healthcare professionals and people living with lupus. This compilation of resources is not meant to be exhaustive. The American College of Rheumatology (ACR) does not benefit financially from sharing these resources. Please click here to view our policies regarding privacy, internal and external linking, and copyright and disclaimer issues. This and the subsequent Self-Management pages are, in part, supported by the Centers for Disease Control and Prevention under Cooperative Agreement Number NU58 DP006138. Its contents are solely the responsibility of its developers/authors. Points of view or opinions do not, therefore, necessarily represent official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.