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A lupus awareness and educational program from the American College of Rheumatology

Lupus Engagement through Activity and Digital Resources (LEADR)

Building on evidence-based approaches, LEADR’s community-driven health equity model is a unique way to address the complex, multi-faceted problem of a lack of provider-issued physical activity recommendations and adherence among African American women and Latinas with lupus.

LEADR Details

LEADR is an intervention to: (1) engage medical providers to discuss and refer a digital health coaching program with their patients; and (2) implement a digital health coaching program to increase physical activity among African American women and Latinas with lupus, reduce negative health outcomes associated with lupus, and ultimately reduce lupus health disparities. The geographic focus for our project will be Georgia

LEADR Collaborators

PACK Health, LLC

Background: Founded in 2013, Pack Health is a patient engagement platform that integrates evidence-based content, metrics, and devices to deliver human-to-human, relationship-based digital health coaching. Their simple and intuitive engagement model is customizable to patient, condition, and program needs to improve experience, increase adherence and persistence, and drive better health outcomes. This translates to a return on investment across industries, including life sciences, health plans, and research. More information can be found at www.packhealth.com.
Role: Through this project the American College of Rheumatology (ACR) and Pack Health partnered to develop a new patient-centric digital health coaching program for patients living with systemic lupus erythematosus (SLE). The partnership utilizes ACR’s unique relationship with rheumatology healthcare providers and key informants.

KDH Research & Communication

Background:

Role: KDHRC is developing the provider resources with the aim to increase a both meaningful and equitable adoption of physical activity and health promoting behaviors among African American women and Latinas who have been diagnosed with lupus using a community-driven approach

LEADR Highlights

While the ACR will serve as the central organization for this project, all individuals and organizations working toward positive impacts for people with lupus will be welcomed, have a meaningful role, and have two-way communication within the network. Thus, while the ACR has significant capabilities to carry out the project, it is the network that will support the success of this project. We have established and will manage a Community Partnership Committee (CPC) as a primary organization body for this project that will infuse meaningful guidance, input, and decision-making throughout. The CPC will include the organizations such as Georgia Council on Lupus Education; Morehouse School of Medicine, Bethune Cookman University; Emory University, National Association of Chronic Disease Directors, as well as advisory committee members representing rheumatologist and non-rheumatology providers, people living with lupus, and other stakeholders. As the project progresses, we envision the CPC expanding to include additional state and HBCU and HSI partners who will represent new geographic areas of expansion to ensure community-level appropriateness and provide a vehicle for sustainability.

Funding note: The ACR received funding for this project from the U.S. Department of Health and Human Services Office of Minority Health’s (OMH) State/Tribal/Territorial Partnership Initiative to Document and Sustain Disparity-Reducing Interventions. The Initiative seeks to support projects which demonstrate whether modifications to existing evidence-informed interventions for selected health issues significantly improve health outcomes for racial and ethnic minority and disadvantaged populations.

For more information contact: Tenesha Wallace Hood, Sr. Specialist, Thood@rheumatology.org

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