Understanding Lupus English Materials
A training program to educate promotores about lupus
What is Understanding Lupus?
Understanding Lupus is a bilingual training program that aims to increase promotores’ understanding of the signs and symptoms of lupus so that they can effectively raise lupus awareness in their communities.
The Understanding Lupus program gives promotores the skills to:
- Describe lupus signs and symptoms
- Raise lupus awareness in their communities
- Identify and help clients overcome barriers to diagnosis
- Find medical providers who diagnose and treat lupus and help people living with lupus navigate the lupus care system
The training program includes a step-by-step guide for facilitators so they can successfully hold their own lupus education sessions for promotores in their communities. The training program is designed to be given in-person among a small group (around 15 promotores) during one 4 hours session or split into two 2 hour sessions.
Who should use the Understanding Lupus training curriculum?
Understanding Lupus is designed to train experienced promotores de salud at Latino-serving community-based organizations. The program teaches groups of experienced promotores how to conduct lupus outreach and raise awareness.
A facilitator or promotores trainer should deliver the Understanding Lupus training in person to promotores. Understanding Lupus should not be used independently, as it is not a self-guided program.
Understanding Lupus is a bilingual training program. All materials are available in English and Spanish. Understanding Lupus contains all the necessary instructions and materials needed to hold a lupus education session. We encourage any organization that provides training to promotores to download Understanding Lupus and hope that you will use them to educate promotores in your network and/or community on lupus.
The Understanding Lupus program contains a Facilitator’s Guide, PowerPoint slides, handouts, and activities to engage the promotores. The program is designed to provide promotores with detailed knowledge on lupus, while providing them the opportunity to practice outreach techniques and skills through activities.
Latinos is used throughout these webpages and Understanding Lupus training program to represent the Latinx community
To access the full version of our curriculum, including the complete Facilitator’s Guide, PowerPoint slides, and handouts for participants, please submit this form. You will receive an email to the address you provide in this form with instructions to download the resources.
Privacy: The information you are providing will not be shared with any 3rd parties. This information will only be used for our tracking purposes and potential email communications from the Lupus Initiative to you. You can send us an email via our contact form at any time to have your information removed from our database.
ACR would like to thank the following individuals for their contributions to the curriculum:
Irene Blanco, MD
Associate Professor of Medicine at Albert Einstein College of Medicine
Cristina Drenkard, MD, PhD
Associate Professor of Medicine at Emory University School of Medicine
Venus Ginés, MA, P/CHWI
CEO/Founder of Día de la Mujer Latina Inc.
Margarita Holguin, MPA
Executive Director of the Chula Vista Community Collaborative
American College of Rheumatology’s Understanding Lupus curriculum was supported by the Grant or Cooperative Agreement Number, 6 NU58 DP006138, funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.