Self-Management Resources

Tracking Your Health and Communicating with Your Doctors

Appointment Preparation


Appointment Prep Guide
Step by step guide developed by GlaxoSmithKline to help you prepare for your next appointment with your doctor

Strategies for Speaking with Your Lupus Doctor
Lupus Research Alliance describes the importance of communicating effectively with your provider including how to use “I” statements

Symptom Trackers to Help You Communicate with Your Doctor


My Lupus Log
App developed by GlaxoSmithKline for Android to help you track and monitor your symptoms so you can better communicate how you are feeling with your doctors

Lupus Checklist
Printable checklist created by GlaxoSmithKline to help you track and monitor your symptoms so you can better communicate how you are feeling with your doctors

Patient Physician Dialog Tool
This Lupus Initiative printable symptom tracker facilitates communication with your doctor by helping you track the onset and duration of symptoms between visits

Goal Setting and Developing Action Plans


My Action Planner App for Mobile Devices
App for Android and IPhone users created by Stanford Patient Education Research Center to help you set and reach your health goals. This App was created for people who have chronic conditions so that they can better self-manage their health

Lupus Action Plan
Printable action plan created by GlaxoSmithKline to help you manage your lupus

Lupus Journal


Lupus Journal
Journal provided by GlaxoSmithKline to help you document your feelings and experiences relating to lupus. By requesting the journal you may also receive a series of self-help booklets called “Speaking of Lupus”, designed to help you communicate with your doctors, friends and family about lupus

This and the subsequent Self-Management pages contain a compilation of resources that may help people with lupus self-manage their health problems. The inclusion of these resources was based on recommendations made by a workgroup comprised of healthcare professionals and people living with lupus. This compilation of resources is not meant to be exhaustive and will be reviewed and updated at regular intervals. American College of Rheumatology (ACR) does not have commercial interest in any resources for which an organization collects a fee. Although most resources have been selected based on their effectiveness for specific or generic health problems, it is to the decision of each person with lupus and his or her healthcare team whether a specific resource might or might not be useful to self-manage his or her health problems. As part of the American College of Rheumatology, The Lupus Initiative follows the ACR’s policies regarding privacy, internal and external linking, and copyright and disclaimer issues. Please click here to visit the ACR for website policies. This and subsequent Self-Management pages are, in part, supported by the Centers for Disease Control and Prevention under Cooperative Agreement Number NU58 DP006138. Its contents are solely the responsibility of its developers/authors. Points of view or opinions do not, therefore, necessarily represent official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.