Patients & Supporters

Tracking Your Health and Communicating with Your Doctors

Appointment Preparation

 

Appointment Prep Guide
Step by step guide developed by GlaxoSmithKline to help you prepare for your next appointment with your doctor

Strategies for Speaking with Your Lupus Doctor
Lupus Research Alliance describes the importance of communicating well with your provider including how to use “I” statements

Symptom Trackers to Help You Communicate with Your Doctor

 

My Lupus Log
App developed by GlaxoSmithKline for Android to help you track and monitor your symptoms so you can better communicate how you are feeling with your doctors

Lupus Checklist
Printable checklist created by GlaxoSmithKline to help you track and monitor your symptoms so you can better communicate how you are feeling with your doctors

Goal Setting and Developing Action Plans

 

My Action Planner App for Mobile Devices
App for Android and IPhone users created by Stanford Patient Education Research Center to help you set and reach your health goals. This App was created for people who have chronic illness so that they can better self-manage and take care of their health

Lupus Action Plan
Printable action plan created by GlaxoSmithKline to help you manage your lupus

Journaling

 

Lupus Symptoms Reference Kit, including Lupus Journals
The Lupus Symptoms Reference Kit is provided by GlaxoSmithKline for free via mail. The kit includes a series of journals designed to help you organize your feelings about lupus, build confidence, and improve how you communicate with your doctors, friends and family.

Compiled August 2017 by The American College of Rheumatology (ACR) Lupus Initiative workgroup on self-management. This information is provided for general education only. Individuals should consult a qualified health care provider for professional medical advice, diagnosis and treatment of a medical or health condition. This and the subsequent Self-Management pages contain a compilation of resources that may help people with lupus self-manage their health. It is the decision of each individual and his or her healthcare team whether a specific resource might or might not be useful to self-manage his or her health. The inclusion of these resources was based on recommendations made by a workgroup comprised of healthcare professionals and people living with lupus. This compilation of resources is not meant to be exhaustive. The American College of Rheumatology (ACR) does not benefit financially from sharing these resources. Please click here to view our policies regarding privacy, internal and external linking, and copyright and disclaimer issues. This and the subsequent Self-Management pages are, in part, supported by the Centers for Disease Control and Prevention under Cooperative Agreement Number NU58 DP006138. Its contents are solely the responsibility of its developers/authors. Points of view or opinions do not, therefore, necessarily represent official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.