Patient Resources

PATIENT DVD: “LUPUS – WHAT YOU NEED TO KNOW”

The Lupus Initiative® has partnered with Emory University School of Medicine to create this video resource for patients with lupus and those who wish to better understand and support patients living with this persistent illness. The video covers topics related to the newly diagnosed patient and those managing life with chronic disease. The video, entitled “Lupus – What you need to know,” was recorded in English and offers subtitles in Spanish and English.
 

MOBILE APP (for iPhones and iPads)

The Lupus Companion© is a symptom, medication and appointment diary for people living with Systemic Lupus Erythematosus. The Lupus Companion makes it easy for you to record how you are feeling day-to-day and then to present the information to your doctors in an easy to read format. Click here for more information about the app and how to access it for FREE.
 

SYMPTOM TRACKER (PDF)

Using our Symptom Tracker, patients can monitor the onset and duration of symptoms between visits in order to provide comprehensive information during examination. Click here to get the Symptom Tracker. The tool is available in both English and Spanish.

 

“ASK ME THREE” – AN ILLUSTRATED STORY ON ADHERENCE (PDF)

“Ask Me Three” is an illustrated story inspired by the article Patient-clinician communication key to better adherence by Michael Rapoff, PhD. The adherence graphic highlights the importance of following your doctor’s instructions and the value of good communication between patient and physician. Click here to view and download in English. Click here to view and download in Spanish.

 

“LIVING WITH LUPUS” – AN ILLUSTRATED STORY (PDF)

“Living With Lupus” is an illustrated story that offers provider and patient advice on managing lupus.
Click here to view and download in English.

 

PATIENT JOURNEYS

Click here to see “Climbing Higher: Shanelle’s Lupus Story”.

Click here to learn more about Shanelle’s journey

Click here for The Lupus Initiative Story Bank

Click here to see “Living with lupus: One Man’s Perspective”, a conversation with Victor Jackson about how lupus has affected his life.

Click here to read about Gabrielle Andrews competing and thriving with lupus.