Lupus is a serious national health problem, affecting as many as 1 of every 200 people in the US, yet an estimated 80 percent of Americans know little or nothing about lupus.
There are many groups and organizations diligently working to improve the lives of people with lupus, and those listed below are only a representative sampling.
- Symptom Checklist: with tips to encourage a effective communication between patient and healthcare professional is available here.
- Lupus Story Bank: Video advice is available from those impacted by lupus offering practical suggestions for working with your healthcare professionals to improve your quality of life and the management of disease. Click here.
Lupus Foundation of America, Center for Clinical Trials Education (CCTE)
The Lupus Foundation of America’s Center for Clinical Trials Education is a resource for people with lupus and their families who want to learn about clinical trials.
Lupus Together for Clinical Trials
The Lupus Research Institute and its National Coalition of state and local lupus organizations is dedicated to finding new and safer options for treating and preventing systemic lupus. Participation of people with lupus in clinical research is the way to make this a reality.
The Medical University of South Carolina Lupus Erythematosus research group (M.U.S.C.L.E.)
The Medical University of South Carolina Lupus Erythematosus research group (also known as M.U.S.C.L.E.) is comprised of faculty and staff with interests in clinical, translational, and basic research related to lupus. Patients interested in participating in research are invited to contact one of our study coordinators to learn more details about our research trials.