The Patient’s Perspective
What Lupus Patients Want Providers to Know: Facilitating Support Systems
Patients with childhood onset lupus give practitioners insight into how they can best support their patients who have lupus, including the importance of helping them build a support system.
What Lupus Patients Want Providers to Know: Every Patient is Unique
Three patients who have lupus describe some of the challenges they have faced in living with the disease and how important it is for practitioners to recognize how the disease affects each of their patients, and that every patient is unique. Dr. Graciela Alarcón of the University of Alabama at Birmingham stresses the importance of all types of health care practitioners having knowledge about lupus.
What Lupus Patients Want Providers to Know: Learn by Listening
Patients explain the impact practitioners can have on their patients’ health simply by listening. Patients can provide valuable insight on their previous treatments and current symptoms; listening can build strong doctor-patient relationships and keep the lines of communication open.