The Lupus Initiative has several exciting projects underway to advance the goal of raising lupus awareness and eliminating the associated health disparities.
The ACR is currently developing a program to educate non-rheumatology providers who serve American Indian/Alaska Native (AI/AN) communities about recognizing the signs and symptoms of lupus, the risks of lupus for those communities and making appropriate referrals to specialists.
Promotora programs connect low-income, at-risk Latinos with health and social services, provide health education, and empower clients with positive coping skills. The success of promotora programs stems from their cultural competency. Promotoras are trusted members of the community who reach out as peers to overcome language barriers and distrust of the medical system in the United States.
The ACR provides lupus education to promotoras (Latina community health workers). In addition to this education, we provide promotoras with lupus awareness materials to distribute to their clients. Contact us for more information.
The Playbook Project is a localized grassroots lupus awareness campaign initiative that provides turnkey grassroots activities to student organizations at four-year colleges and universities.
The Playbook is a step by step implementation guide that provides student organizations with detailed activities to interact with, personalize and spread the key messages of the national lupus awareness campaign in their respective communities.
Access the Playbook HERE.
The ACR utlized funding from an Office of Minority Health (OMH) grant to develop and distribute provider educational materials aimed at increasing minority participation in lupus clinical trials.
Materials to Increase Minority Involvement in Clinical Trials (MIMICT) is a program to help clinical trials sites and providers to work together to deliver accurate, trusted, and understandable information to people with lupus so that they can make informed decisions about participation in clinical trials.
Visit MIMICT website HERE.
The ACR and the Lupus Foundation of America (LFA) have partnered to create the “Be Fierce. Take Control.TM” national awareness campaign is designed to raise awareness of the signs and symptoms of lupus, and ultimately reduce the time to diagnosis by educating and empowering young African American and Latino women ages 18-25, who are most at-risk for developing the disease.
The campaign uses social media, digital advertising, influencer video content created by a company founded by Aston Kutcher – featuring the NY Sharks professional women’s football team and NY Shark’s assistant coach, Collette Smith who was recently named as the first African American NFL coach and the second female NFL in history.
Visit the campaign website HERE.
The ACR Small Group Provider Sessions aim to reduce health disparities and time to lupus diagnosis for impacted populations. We work to achieve this by educating providers and improving referral connections.
The ACR Small Group Provider Sessions consist of live meetings held at rural Area Health Education Centers (AHECs) between rheumatologists and rural healthcare providers. The rheumatologist delivers a presentation on lupus followed by time for networking and relationship building. Contact us for more information.
In previous years, the ACR has worked with state organizations to develop road maps for increasing lupus awareness and knowledge within their respective states. Currently, the ACR is partnering with the National Association of Chronic Disease Directors (NACDD), Georgia Council on Lupus Education and Awareness (GCLEA) and the Big Bend Rural Health Network to implement at least one action item from the plan.